Wednesday, May 11, 2011

To Write Love On Her Arms



Have you ever heard of the organization To Write Love On Her Arms? About three years ago, I saw some local teens wearing shirts with this logo, and being the naturally curious soul I am, I went and googled to find out what the logo was about. It would be an understatement to say that this cause is close to my heart.

The TWLOHA MISSION STATEMENT
"To Write Love on Her Arms is a non-profit movement dedicated to presenting hope and finding help for people struggling with depression, addiction, self-injury and suicide. TWLOHA exists to encourage, inform, inspire and also to invest directly into treatment and recovery."

The Story of TWLOHA
excerpts from their vision statement:

"..It hits me that she won't see this skyline for several weeks, and we will be without her. I lean forward, knowing this will be written, and I ask what she'd say if her story had an audience. She smiles. "Tell them to look up. Tell them to remember the stars."

...Songs are brave things bold enough to sing when all they know is darkness. These words, like most words, will be written next to midnight, between hurricane and harbor, as both claim to save her. Renee is 19. When I meet her, cocaine is fresh in her system. She hasn't slept in 36 hours and she won't for another 24.

....She has agreed to meet us, to listen and to let us pray. We ask Renee to come with us, to leave this broken night. She says she'll go to rehab tomorrow, but she isn't ready now. It is too great a change

....She has known such great pain; haunted dreams as a child, the near-constant presence of evil ever since. She has.. battled depression and addiction, and attempted suicide. Her arms remember razor blades, fifty scars that speak of self-inflicted wounds.

...Everyone is asleep. The sun is rising. She drinks long from a bottle of liquor, takes a razor blade from the table and locks herself in the bathroom. She cuts herself, using the blade to write "FUCK UP" large across her left forearm

...The nurse at the treatment center finds the wound several hours later. The center has no detox, names her too great a risk, and does not accept her.

...For the next five days, she is ours to love. We become her hospital and the possibility of healing fills our living room with life. It is unspoken and there are only a few of us, but we will be her church, the body of Christ coming alive to meet her needs, to write love on her arms."

My Background
I have battled depression for most of my life. It took until last year for me to really understand that, because mine manifests as emotional detachment, rage, and intrusive thoughts far more often than sadness and despair. I didn't understand that depression could manifest that way.

When I had post partum depression after my second child was born, I had a total disconnect of emotion to everyone but my baby.. and most mothers describe a lack of attachment TO the baby. I never understood that my emotions were a valid/recognized form of depression because they seemed different from the way other people were affected.

I have written quite a bit about my depression. I write to tell my story, to speak for those who have not yet found their voice, to give validation and hope, and to connect in meaningful ways with my community of readers. I have come to embrace authenticity and find empowerment in being vulnerable and transparent. The writing and work of author and speaker Brene Brown is a big part of finding that courage to risk sharing my heart here and other places online, as well as in my personal friendships.

I have struggled with Post Abortion Stress Syndrome (very much like PTSD and encompasses things like depression, dissociation, anxiety, guilt, suicidal thoughts). I am incredibly sensitive to criticism and condescension, and far more things hurt me every day than the average person. My skin is just very very thin. It doesn't help that I also have a very overdeveloped sense of empathy. If you've ever seen Star Trek: The Next Generation, I would identify with Deanna Troi, the empath. And yes, I linked it so you would go read about her extra sensory empathy, because even though she's a fictional character, there is some good insight into how I was made. There were episodes of Star Trek TNG where she had difficulty doing her job because she was so profoundly affected by the pain she was sensing from a ship full of people or an entity. I have been similarly emotionally incapacitated on behalf of others. And like her, it is something I welcome, that I would not turn down, that is part of who I am.

I have not lost a friend or relative to suicide. I am fortunate. I have worried often over the possibility of losing someone that I know is close to the edge, having talked friends out of self-injury and considering suicide more than a few times. I have stayed up late into the night, oftentimes all night, talking to friends who are in deep sorrow and bewilderment over the way they have been treated at home, by their boyfriend or girlfriend, by their spouse, by their friends. I have listened to countless stories being poured out both in stoic detachment and in soul-rending grief. Other people's sorrow resonates within my heart, I know whereof they speak. I have been in that kind of pain, even if I have not walked their particular road. I thrive on emotional connection, and because of that, I also know what it is to be without it. I know the desolation, the rejection, the loneliness. And I am compelled to help, to listen, to encourage, to validate, to re-ignite their courage and belief in themselves.

I'm just your average mostly functional suburbanite mom driving around in a minivan with her young children.. and I want to you realize that the people who battle addiction, who self injure, and who consider suicide are just like me. They are also just like you. Having a chemical imbalance, a family history, living with an addiction, chronic pain, chronic illness, or having a life of constant struggle is not a requirement to have reached the end of your ability to cope with daily life, to take one more step. Everyone is different, and unique in their own ability to withstand stress and pain. We cannot compare our journey to anyone else's.

Related to that, my friend Elan wrote this post recently and this part stood out:
  1. Don't leave it up to anyone else, not even a professional, to tell you whether your breakdown or addiction or heartbreak is a mountain or a molehill. No one lives in your heart and mind with you. It's a mountain, because it's YOUR mountain.
  2. Don't fall into the trap of comparing your breakdown or addiction or heartbreak to the worst case scenarios you've seen in life or on television. It is never true that everyone is doing just fine right up until the second that they find themselves sleeping behind a dumpster. They were ill well before that scenario.

  3. from the To Write Love On Her Arms Vision Statement
    from their website
    "You were created to love and be loved. You were meant to live life in relationship with other people, to know and be known. You need to know that your story is important and that you're part of a bigger story. You need to know that your life matters.

    We live in a difficult world, a broken world.....life is hard for most people most of the time. We believe that everyone can relate to pain, that all of us live with questions, and all of us get stuck in moments. You need to know that you're not alone in the places you feel stuck.

    We all wake to the human condition. We wake to mystery and beauty but also to tragedy and loss. Millions of people live with problems of pain. Millions of homes are filled with questions – moments and seasons and cycles that come as thieves and aim to stay. We know that pain is very real. It is our privilege to suggest that hope is real, and that help is real.

    You need to know that rescue is possible, that freedom is possible, that God is still in the business of redemption. We're seeing it happen. We're seeing lives change as people get the help they need. People sitting across from a counselor for the first time. People stepping into treatment. In desperate moments, people calling a suicide hotline. We know that the first step to recovery is the hardest to take. We want to say here that it's worth it, that your life is worth fighting for, that it's possible to change.

    Beyond treatment, we believe that community is essential, that people need other people, that we were never meant to do life alone."

    I would encourage you to read more about TWLOHA and become involved in helping them spread the word. There are too many broken hearts, too many people without support, without community, and without hope.

    There is hope.
    You are not alone.



    Linking up with @shellthings and others today and pouring my heart out at Things I Can't Say

    38 comments:

    1. Jenna - you speak to my heart. The more I read your blog and tweets I feel as though we are cut from the same cloth.

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    2. I love Love LOVE TWLOHA.

      It took me a long time to understand that the self injury I was involved in as a child/teen was actually self injury, because for a long time I had this vision that self injury=cutting and that just isn't always true.

      Depression is still something that I battle regularly. I'm so glad that you mentioned intrusive thoughts because that is an often overlooked manifestation, and it is something that I thought for a long time was just an issue I had.

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    3. I'm so glad that I could contribute in some way to this moving post.

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    4. Such beautiful words for so brutal a topic, You are so real and honest. You have laid out your heart, open, and I now hold it in my heart, gently, tenderly.

      We are of vastly different stories and manifestations of our pain, but connected by the depth of our feeling and caring. Thank you.

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    5. You're amazing.

      Three years ago, I started taking an SSRI for depression. And because I mentioned it on my blog, a relative of my best friend told her to never let me watch her children again because I was taking "crazy" pills. While I was never for a moment ashamed that I had asked for help, that became the moment I knew I had to become an advocate. TWLOHA is one of my favorite non-profits.

      Love you.

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    6. Thank you Jenna. I can't find better words to express what I feel after reading this post .

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    7. What a beautiful organization. It's not a disease that's often visible to the naked eye - depression takes many forms and affects many people. Thanks for speaking out.

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    8. Thanks for writing this....saying what so many of us have already tried to say, or have been too scared to say.

      I am a cutter. I love TWLOHA. I have one of the t-shirts. I am grateful there is help out there and I hope someone who needs it reads this post!

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    9. TWLOHA is an amazing organization.

      My experience after my 3rd baby sounds like yours- I had an attachment to the baby(and to my other 2 kids) but I didn't care about anything else.

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    10. I hadn't heard about this organization, but now that I have, I'm going to go check them out. My depression sounds much like yours - for the longest time I had no idea what was wrong with me. You are amazing...

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    11. this was a lovely post...your words, and that of twloha, spoke out loud what i feel.

      so many of us feel ashamed, judged, embarrassed about having a mental illness...or a history of self harm, etc.

      but i stood up, and i speak now for those who have yet to stand tall and not feel less of a person because of the labeling of others.

      good for you.

      <3

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    12. I am humbled by your responses, grateful to introduce you to twloha, and honored to hear your stories. Thank you for reading and commenting!

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    13. An amazing site. I don't comment a lot but I do read all of your posts. You always speak from the heart and I can relate to so much of what you say. Thanks for sharing this amazing site. It is important that we share these things with others.

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    14. Good post and glad you are promoting TWLOHA. I teach middle school and the clothing line has been popular among my students for a couple of years now. But more than that, I'm glad you share that depression can affect anyone without prior family history, chemical imbalance, etc. A lot of people overlook that and try to find a cause/reason where there isn't always a concrete one.

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    15. Moving post. Thank you for sharing your story and for spreading the word about TWLOHA.

      And also, thanks for visiting my blog! Visiting from PYHO

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    16. Beautiful in your honesty and in bringing to light the journey for so many people. Your nature is so sweet and loving -- thanks for inspiring all of us to remember those around us.

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    17. Jenna what a post. I lost my brother this past may to suicide. I struggled for several months with how we could have changed things for him. I think that knowing that you suffer from depression is so key. When you don't know, it's easy to think there is something "wrong" with you. After my first baby I faced ppd the way you describe. Now almost four years later, I can see that's what it was because I was completely detached from everyone around me and almost obsessed with my son. I'm so grateful that you write about this so honestly. I am going to set aside some time to read some of the links you provided!

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    18. So important, so thoughtful. You are heard. XO

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    19. This was so important to share. Thank you.

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    20. I've never heard of this organization. Thanks for sharing. I think we all know someone suffering from some kind of depression. This opened my eyes.

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    21. good grief how heartwarming.

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    22. Jenna, you are a beautiful soul.

      I share my own little journey and am always so touched when you stop by to acknowledge what I have written.

      xxx

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    23. I think it is so wonderful that you are trying to help people by telling your story. Everybody fights their demons differently. Thank you for giving your readers insight into how you deal with yours.

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    24. What powerful words! Thank you for sharing.

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    25. this was incredibly moving... i'm so grateful to you for writing it.

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    26. Thank you for this post and finely giving me a name for my “extra sensory empathy”, something I have felt burdened by since I was a child. When I say “I feel your pain”, I mean I latterly feel your pain. As an adult I have a better understanding of it, and I have been able to use it to do some good, but it can be hard to live with. Anyway, I am a new follower here from Band Back together, and I appreciate this post.

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    27. I knew nothing of this site Jenna. I will definitely get the word out. Depression is a time sucking shadow that is always lurking about for me.

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    28. This sounds like a great organization. I had never heard of it before. Thanks for spreading the word.

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    29. I'm fist-pumping you darling, what a fantastic post. Thank you for sharing this organization with me and for letting more people know that sometimes addiction just happens.

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    30. Hi Jenna I popped over after you left a comment on my kangaroo blog (thanks for that). I had not expected to find such depth of feeling that really touched my heart. I couldn't resist becoming your 100th follower. Thank you for letting me share your journey.

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    31. I'm ashamed to say I had this locked in a folder for future reading which I just found.

      This post breaks me... because it is me: The rage, the disconnect, the lack of emotion or attachment to anyone but your baby when trying to examine PPD.

      Even now, I struggle with how to categorize myself because there just isn't a place I fit.

      THANK YOU for posting this.

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    32. You found your inspiration. And it's perfect. xo

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    33. This is such a beautifully written post and it speaks great volumes. I too had PPD and didn't know what it was all about. I didn't hate my son, but I hated every single living breathing thing around me. Thank you for this post.

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    34. I think you're incredible. With your honesty, your caring heart and your kind soul. Using your pain and experience to help others, is true giving.

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    35. Thank you for sharing this and you are so right. People battling massive challenges and difficulties ARE just like us. It's so important never to assume otherwise.

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    36. Thank you so much for sharing this---the organization is incredible--like you. Thank you for linking it up!xo

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